During the initial surgical discussion, patients may struggle to
picture what their surgical journey will look like, and what the steps
may be. The 'EOS journey guide' can be given to your patients to help
them become more informed.
This downloadable brochure will help your patients understand what
to expect from the EOS journey:
The optimal timing of EOS during the lifetime of a person with
haemophilia is a matter of debate. While advanced procedures,
particularly joint replacement, may be more appropriate for patients
who have completed growth, there are arguments in favour of surgery in
younger patients: younger people can benefit from interventions
earlier in life and are more easily rehabilitated.1
Assessing whether a patient is eligible for surgery involves an MDT
approach and assessment of the level of arthropathy. Following the
initial conversation, you may determine that the patient could be a
candidate for EOS.
The 'planning tool' can be used by the specialist nurse during a
pre-surgery appointment and then handed to the patient.
The patient planning tool is a downloadable brochure which focuses
on key information about their surgery. It includes an additional
discussion guide for assessment of readiness for surgery (for the
patient to complete) and a pain management plan (which the patient
should complete alongside their physiotherapist).
Nurse will discuss and then hand to the patient
Appointment to discuss considerations before and after surgery
Before you and your patient make the decision to go ahead with EOS,
it is important that they understand all of the facts.
With that in mind we have developed the 'patient counselling tool',
to help guide a discussion around the potential benefits and risks of
surgery and any concerns that your patient may have. This material has
been designed for use in conjunction with the MDT (physician, surgeon,
and specialist nurse).
Follow-up with patients who are considering surgery
EOS, elective orthopaedic surgery; MDT,
multidisciplinary team; rFVIIa, recombinant activated factor seven.
The materials within this toolkit are for educational and
informative purposes only. The materials are not intended to replace
any advice or information provided by a haemophilia specialist and/or
other healthcare professionals. Surgery in patients with haemophilia
(with or without inhibitors) can carry specific risks that should be
carefully assessed and discussed with patients. Surgery in patients
with haemophilia (with or without inhibitors) should always be done in
consultation with a specialised haemophilia treatment centre.1
